We just met with the Geneticist and she does not believe there is any correlation between all of her heath issues - what a relief! She believes the Craniosynostosis and her unwillingness to turn her head to the left are due to the fact that she may have dropped in my pelvis during pregnancy early. Her head may have been squeezed in my pelvis which didn't allow the skull room, therefore fusing. Her head position at that time may also be why she favors her right side.
She believes that the tumors and SVT have nothing to do with her other issues. She also believes (as do many of the other doctors) that the tumors are benign and not ominous at this time. The issue will be if they are growing. Our MRI is scheduled for January 4.
The Craniofacial Plastic Surgeon told us during the appointment that he put in the paperwork for surgery and suggests doing it around March/April.
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