Avery Alexandra was born on October 14, 2009. She has had many health issues to battle in her short life and this blog is for our family and friends to stay updated on her progress. We also want to document this process for other families to view who may be going through the same experience. We thank you all for your continued love & support..♥♥

Friday, January 8, 2010

Neurological Oncologist

We met with the Neurological Oncologist today and we will not ever have to see him again :o). He said he thinks the growths in her head where cysts and were never in a location that would have any impact on her neurological function. He suspects she will be completely perfect in that regard.

He also doesn't anticipate needing another MRI to check for the growths. They will most likely not grow back and go away completely! However, the growth behind her eye, in her orbit, is still there. At this time they are only going to do something about it if it starts to affect her eye, which it hasn't done yet. During her Craniosynostosis surgery, they will determine what to do about that growth.

Tuesday, January 5, 2010

MRI Results & Opthomologist

We met with the Opthomologist today and FINALLY some good news....the 3 spots in her head are almost gone!!!! We are thrilled about this news. The spot behind her eye is still there and the same size and is initially believed to be a cyst. Currently, it is not harming her eye in any way. Once she has her Craniosynostosis surgery, they will look at the spot behind her eye and determine what to do with it.

Her surgery will likely be on April 20, 2010. We are currently waiting to ensure that all three surgeons (Craniofacial Plastic Surgeon, Neurosurgeon, and Ocular Surgeon) will all be available at that time.

Monday, January 4, 2010

MRI #2

Avery was sedated for another MRI today. She handled the sedation well and was in recovery for 4 hours. We are still waiting to hear the results.