Avery Alexandra was born on October 14, 2009. She has had many health issues to battle in her short life and this blog is for our family and friends to stay updated on her progress. We also want to document this process for other families to view who may be going through the same experience. We thank you all for your continued love & support..♥♥

Friday, January 8, 2010

Neurological Oncologist

We met with the Neurological Oncologist today and we will not ever have to see him again :o). He said he thinks the growths in her head where cysts and were never in a location that would have any impact on her neurological function. He suspects she will be completely perfect in that regard.

He also doesn't anticipate needing another MRI to check for the growths. They will most likely not grow back and go away completely! However, the growth behind her eye, in her orbit, is still there. At this time they are only going to do something about it if it starts to affect her eye, which it hasn't done yet. During her Craniosynostosis surgery, they will determine what to do about that growth.


  1. Why to see the oncologist? Is there any abnormal finding in the pathology report from tissues collected from surgically-resection?

  2. Hi my name is lisette and i have a little boy that may have right coronal and I live in Temecula,Ca. Who are you seeing as far as neurosx and plastics at childrens? Ryan has an appt with craniofacial team on 2/17 at kaiser. I'm switching him to ppo so he can see Dr. meltzer. also your daughter is beautiful, what type of cranio does she have? Thank You

  3. Hi Shelia, Thanks for keeping us updated on little Avery. I'm thinking about her all the time and keeping good thoughts for the surgery she will have in a short while. I hope all is well with your family and I hope you don't mind but I put up a link on my blog to yours. If you'd rather I not have it there just let me know. Hope all is well and take care!