Avery Alexandra was born on October 14, 2009. She has had many health issues to battle in her short life and this blog is for our family and friends to stay updated on her progress. We also want to document this process for other families to view who may be going through the same experience. We thank you all for your continued love & support..♥♥



Saturday, March 24, 2012

CFPS Appointment and Surgery Details

We met with Avery's CFPS (Dr Cohen) this week to discuss surgery. He is going to open Avery's head up in the same zig-zag incision from her first surgery. He will also try his hardest to not have to shave too much hair along the incision line. He will then remove the front of the skull/browline. He will implant some bone grafts in the top corner of her right orbit to try and round it out and make it match the left better (trying to reduce the harlequin effect of her right orbit from being born with a closure of her right coronal suture). He will also work to even out the forehead/brow bone and improve the gap on her right side where the bone graft didn't vascularize from her first surgery. This time, unlike last, she will have a drainage tube placed in her head and left there for a couple days after surgery to help reduce swelling. So hopefully she doesn't swell as bad as she did from her first.

Date: April 17th, 2012
Time: 7:30 AM
Duration: Up to 4 hours
Hospital Stay: Approximately 4 days
Location: Rady Children's Hospital San Diego
Surgeons: Dr Steven Cohen (Craniofacial Plastic Surgeon) & Dr. Hal Meltzer (Pediatric Neurosurgeon)
Avery will have a Cardiological Anesthesiologist to closely monitor her heart while she is under anesthesia.
Blood Transusion: Jason (Avery's Dad) will be directly donating his 0- blood for surgery for a blood transfusion.
Surgery Facebook Event: http://www.facebook.com/events/415147161833883/

Avery has been taking her heart medication (Fecainide) great. She will wear another Holter Monitor on Thursday to see if the SVT has been completely controlled. When we were discharged from the hospital, she was still having a few very quick and small SVTs. She will also have another EKG the day before her surgery.
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1 comment:

  1. BethMarch 24, 2012 at 7:05 PM

    Hi Sheila,
    It's Beth (Audra15)from CK. I was just catching up on Google Reader and was shocked to read your last 2 blogs entries. I've told you this before but Avery has always had a special place in my heart from the coincidence that she was born on the day of Kyra's cranio surgery. I think she is the cutest thing and will be sending many, many good thoughts and prayers your way. I know that you are strong but honestly if there is anything at all we can do as a CK family please let me know.

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