Plastic Surgeon, Geneticist & Helmet Therapy

We met with the Plastic Surgeon and Geneticist today. The Geneticist emphasized again, that she doesn't think there is a connection between Avery's health issues, but that genetic testing still has a way to go. She will continue to monitor and watch Avery and will likely do more testing as she gets older. She also recommended re-starting Physical Therapy to help with her tilt, spine & neck. Otherwise, she said that Avery is progressing wonderfully and developing normally. We will see her again in 6 months.

The Plastic Surgeon said that Avery's incision site is healing nicely. The symmetry is not quite where we would like it to be though. We have been referred to Cranial Technologies to be fitted for a helmet. The helmet will not guarantee to do anything, but it may help in creating more symmetry. Insurance oftentimes will not cover helmet therapy....we are hoping it does!

Avery's Eyes

We met with Avery's Ophthalmologist yesterday. She is far-sighted in both eyes and has a stigmatism in her left eye. We will need to start patching her left eye 2 hours everyday now to try and make her right eye stronger. Since her eyes have different prescriptions, she will likely need to start wearing glasses in a few months to help the eyes work together to see. We will follow up in 3 months to see if her eyes are improving or if she will start wearing glasses.

Otherwise, Avery has been doing very well. She is laughing, sitting, and eating baby food. We follow up with the Craniofacial Plastic Surgeon and Geneticist next week.

She's doing great!

Avery has been recovering wonderfully. She has almost no swelling anymore, and her black eyes are almost gone as well. She is happy, laughing, smiling, playing and generally back to her old self. Except for sleeping. She wakes constantly during the night. We are hoping that is her just adjusting to 'hospital-time', where there is no difference between day & night.

We still have many more appointments to come, but now that we are past the surgery, I feel very relieved. As they say in the 'cranio-kids-world'.....WE ARE ON THE OTHER SIDE! :-)

I will continue to post as we journey through SVT, torticollis, and scoliosis. So check back for updates if you'd like to continue to watch her progresses. Our little fighter has a little more fighting to do!