Avery Alexandra was born on October 14, 2009. She has had many health issues to battle in her short life and this blog is for our family and friends to stay updated on her progress. We also want to document this process for other families to view who may be going through the same experience. We thank you all for your continued love & support..♥♥

Wednesday, May 26, 2010

Plastic Surgeon, Geneticist & Helmet Therapy

We met with the Plastic Surgeon and Geneticist today. The Geneticist emphasized again, that she doesn't think there is a connection between Avery's health issues, but that genetic testing still has a way to go. She will continue to monitor and watch Avery and will likely do more testing as she gets older. She also recommended re-starting Physical Therapy to help with her tilt, spine & neck. Otherwise, she said that Avery is progressing wonderfully and developing normally. We will see her again in 6 months.

The Plastic Surgeon said that Avery's incision site is healing nicely. The symmetry is not quite where we would like it to be though. We have been referred to Cranial Technologies to be fitted for a helmet. The helmet will not guarantee to do anything, but it may help in creating more symmetry. Insurance oftentimes will not cover helmet therapy....we are hoping it does!

1 comment:

  1. Well if it doesnt cover it we will go from there and we will deal with it =) She will have what she needs, you have amazing people in your life who will help however they can, us included! Keep me posted on this k xoxoxox =)