The CFPS gave us a few options: (1) wait until she is closer to 5 years old, when her head has stopped growing, to do a pretty invasive touch-up surgery; (2) "re-do" the original surgery right away while she is still young and won't have lasting memory of it; (3) get a second opinion from the CFPSs at UCLA.
We have decided to go to UCLA and see what the CFPS there says. Currently, I am trying to gather all the medical records I can about Avery's condition so that I may share that with the doctors there.
A 2nd surgery is in Avery's future. At this point we are just trying to determine when, how & where. Touch-up, 2nd surgeries are done about 25% of the time & 're-do' surgeries are done about 5% of the time. Risk-factors from surgery are generally the same as with her first surgery.
As always, I will update the blog when there is new information to share.....