I didn't mention it in my last blog, because I didn't want to overly concern anyone, but we had a Neuroblastoma test done while we were in the hospital. A few of her health issues were markers for the rare cancer. Well, last evening our Pediatrician told us the results were normal & she doesn't have the rare cancer! ;o) We are extremely thrilled! We are still waiting on genetic testing that was done. Those results take much longer.
Our pediatrician also said that he doesn't think we should treat the fused labia, or do anything about the scoliosis. After her surgery, he thinks the scoliosis will be much better and will likely never need any treatment.
We did receive a prescription for an ointment for her right eye. I noticed while she was sleeping at the hospital that she was unable to close it completely, so we will need to put an ointment on it before bed each night.
I am off to the Cardiologist today. Will update again soon.
I am on the Oct 2009 board on BBC and saw this blog, soo very happy for you, your family and your LO that she does not have that rare form of cancer. I will keep her and your family in my thoughts and prayers, I hope the doctors are able to find out what is going on so you can start treatment asap if needed.
ReplyDeleteI am so happy for you guys and little Avery that the test came back normal. You guys are so strong and Avery is so lucky to have such a wonderful family!
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