A lot of you have been asking what the details are about the Craniosynostosis surgery (She has right-unicoronal non-syndromatic craniosynostosis). Here is some of the information I know right now:
-They will cut a zig-zag incision from ear to ear over the top of her head.
-The scalp will be peeled back and the forehead taken apart.
-The Craniofacial Plastic Surgeon (Dr. Cohen) will put the forehead back together with dissolvable screws to give her head a more round & even appearance.
-The Neurosurgeon (Dr. Meltzer) will monitor the procedure to ensure the brain is intact and be there should any issues occur.
-The Ocular Surgeon (Dr. Kikkawa) will look at the growth behind her right eye and determine if he should: take it out, take a piece out and biopsy it, or leave it alone.
-Blood Transfusions are needed 50% of the time.
-The forehead will be put back and the incision will be closed with ~50 staples.
-When her hair grows in it should cover the incision.
-Duration: 4 hour surgery
-Her heart will be monitored the entire time to ensure that her SVT (Supraventricular Taccycardia) is controlled.
-Stay in hospital: at least 4 days
-Only mommy & daddy are allowed to visit her.
-Her head will swell huge (like a basketball it was described to me) and her eyes will be swollen shut.
-The height of the swelling will be around day 3.
-We can go home once the swelling starts to go down and her eyes are opening.
-She should be looking pretty normal after 2 weeks.
We will learn more details at her pre-op appointment scheduled for April 7th.