Avery Alexandra was born on October 14, 2009. She has had many health issues to battle in her short life and this blog is for our family and friends to stay updated on her progress. We also want to document this process for other families to view who may be going through the same experience. We thank you all for your continued love & support..♥♥
Sunday, December 13, 2009
December 3, 2009: We met with the Neurosurgeon and he confirmed that she has Craniosynostosis and will require surgery. He recommends doing it at 6 months of age. He also referred us to an Ocular Surgeon to determine what will be done about the unknown tumor behind her eye. We were also referred to a geneticist to determine if all her medical conditions (bone, brain, eye, heart) are indeed unrelated, or if they are part of a syndrome. Lastly, we were referred to a Neurological Oncologist who will determine what to do about the unknown tumors around her brain.